My parents are also back on track while it kind of dissipated for a month or so while Mom got two surgeries back to back. Her back surgery first then a week later was her foot reconstruction. It has been a heck of a road but so proud to see my mom up and walking again and also down from a size 24 W to 20!! :)
I have been dating Tony for a year and a month now and I couldnt be any happier!! We celebrated our 1yr by seeing Iron Man 3 which was amazing and then going on a 7 day cruise to the BAHAMAS!!! That trip was amazing and never would have I imagined that I would be able to take a trip there and Tony borught that dream to life for me. He makes me more happy then I have ever been.
I am extremely lucky to have and so many people in my life that care for me. As I know I will need these prayers and love in the coming weeks and months. I have been feeling great with my headaches and eye since 2011 when I underwent a small procedure to relieve pressure from a nerve in my skull. But about a month or so now I noticed the swelling and pain is now back in fullforce.
The Swelling around the eye is the fluid and bone.I have had Fibrous Dysplacia since I was born which is a rare bone disease where extra bones grow in the body and mine is around my left eye orbit. I have had about 5 craniatimies since 2001 and looks as if I will be conquering my 6th!!! I emailed my neurosurgeon and my savior Dr. George Jallo who took over for Dr. Ben Carson almost 10 years ago. He has been there through all but one of my surgeries and I would recommended him to anyone!!! Anywho it seems as though the bone grew around the artifical bone and hardware they put in in 2009. There is also some fluid around there as well which is causing pain and much discomfort.
However, I continue to be a trooper with this pain as I have had this as apart of my life for more then half of it so I can deal with it a little longer. I underwent a CT scan today so I should be getting a better idea of what they are going to be doing in surgery. For those of you who don't really know what it intales I can safely say it is gross. They have to open me from ear to ear, pull down my skin and chisle down the bone around my eye. I told you it was gross. But as I said before this will be the 6th I have had since 2001. It is really old Hat to me and I know I have so many that will be there for me, and I love them so much for it. I know my parents and family have seen me grow with it over the years and how far I have come, but I know it can still be scary any time. But I know with my hero Tony around with my parents I think they will be fine and I will be great!!! My team of awesome hopkin docs will have me up and running in no time. I will try and update on here with any news I have on the upcoming surgery and how I am doing.
